Description of activity
What do we offer?
Rainbow Trust provides emotional and practical support to families whose son or daughter is affected by a life threatening or terminal illness.
Support is parent / carer led to ensure our Family Support Workers offer support that is specifically tailored towards each child, young person and parent / carer in the family. Support includes:
• Providing emotional support to each member of the family throughout the child / young person’s illness;
• Spending time with the unwell child / young person at home or in hospital;
• Accompanying and supporting parents and their child / young person during clinic and hospital appointments;
• Providing short breaks for the unwell child and siblings which may include fun activities or trips to local amenities;
• Helping maintain normality in the home by working with, and caring for siblings, to ensure the usual activities are continued for the family;
• Providing practical support, housework and shopping;
• Providing end of life care and ongoing bereavement work.
Who is it for?
Family support is available to all families whose son or daughter is affected by a life threatening illness. This includes parents, carers, the unwell child, brothers, sisters, grandparents and help with extended family members to support each other.
Any family can receive support from the point of their child / young person’s diagnosis, (including antenatal and neonatal periods when diagnosis has been made) and support with young people during transition towards adult services up to the age of 18.